Well, it’s been 90 days since the whole pumpkin-head-top carving, and my headaches are still with me 24/7, but a bit less intense (now 2 normally, was 3 normally before, still pops up occasionally to a 5-6, but ice and Excedrin knock it back down to below 3 pretty reliably). Still floating on a boat, but I’ve got my sea legs, so it doesn’t bother me, just still have to use the cane and I wobble when I walk – meh. Hearing is still supernatural, especially in the upper registers, so earplugs are my friend. And everything still tastes good, I think I’m not losing weight here.
And I’ve developed a sometimes intense itch – on the inside of my skull where I can’t scratch! It comes and goes, but can be a real annoyance. And lastly, my sleep patterns and stamina are still flakey. All of this is getting old, I feel like I should be further along in the recovery than I am. But it is what it is, feh. Next month I go for a new MRI and a visit with my BFD Dr. Edy, then my neurologist Dr. Savani. I’m truly hoping that they will allow me to get off the Keppra (anti-seizure meds) – we read the label on the bottle a couple of weeks ago and it clearly says “May cause dizziness” – peh! Maybe once that’s out of my system the balance will stabilize and I can stop worrying about falling down all the time. Not that I have – perfect record so far – no falls!
Sistah Laura, I’m still counting on your promise that the headaches will go away, but I talked to a guy who had something very similar to mine 4 years ago (he did have post-surgical complications though, which I did not), and he said they lasted for 18 months! He’s still working on recovery – that was kinda depressing. I’m supposed to be
back to forward to the new ‘normal’ in either 2-3 months (nope), or six months to a year (more likely). But I’m working hard at keeping positive, sometimes it’s kinda hard, sometimes not so.
Been dipping my toes into the shallow end of the social networking pool – a like or comment on facebook every now and then, and a tweet or retweet every once in a while (like for The Voice). But still mostly staying away from going all-in with all that online mosh. At work, Pam’s doing all the Practical Help video editing and posting now. I’m doing the occasional odd-job drafting answers to questions our members pose. Sometimes I even finish them!
This feels like a long journey – a space odyssey (hint, the space is in my head these days!). I should be enjoying the journey, but want this ride to be over. I’d like to get back to driving myself instead of having to beg a ride everywhere. I’d like to sleep through the night, or anytime for a solid 8 hours. As long as I’m wishing, I’d like to be able to spend more than an hour or so with friends or family without having to go have a ‘lie-down’. But I’m not complaining, after all, I’m in great shape and with a good prognosis for full recovery and (hopefully) no recurrence. Ok, maybe I’m complaining just a little.
So the year-end is coming, and 2013 is ending with a whimper. Besides my little troubles, we’ve had some roof leaks and other household calamities, plus issues with relatives. Be glad to kiss 2013 buh-bye, and let’s have a great 2014!
Looking forward to seeing CJ graduate and head off to college (gulp!), and the rest of my recovery. Oh, and an exciting new master bathroom (Feb-Mar?) with grab bars in the shower and all the non-skid I can handle – then I can fully move back upstairs! Been taking my showers and naps downstairs in our ADA’d guest suite. And especially driving, I miss the freedom to just get in the car and go anywhere I want, anytime I want (well, almost). Getting gas, groceries and dry cleaning will be a treat!
My stock market rise in physical and mental improvement has been on a generally upward trend – each week I’m able to recount (or someone recounts to me – thanks Barry!) at least one thing I am doing I wasn’t doing the week before. And yes, this post is probably not as entertaining as the one’s Sistah Lisa has been doing for me, but I’m gonna do it myself!
Funny what thoughts run through your head when you look back on the whirlwind of the last 3 months, here’s a double handful:
- thankful to be alive
- thankful to not be a vegetable
- thankful to not be mentally deficient (right?)
- thankful that the tumor was ranked ‘benign’ and unlikely to recur
- thankful to still have some skills (right? looking for confirmation here)
- thankful my wife is still speaking to me
- thankful my son hasn’t forgotten me (nor his friends!)
- thankful that I’m improving in so many ways
- thankful that my family and friends have stuck with me
- thankful that we have health care coverage so the surgery et. al. didn’t make us go broke
- thankful for all the blessings of living in a world with good people everywhere
- thankful for everyone who cares, and for retaining the capacity to care and love
So let me close with: This holiday season, I sincerely wish for peace on earth and good will toward everyone. Hey, I can dream, can’t I?
- 24th of Kislev, 5774
- A Milestone here, a milestone there…